Living With Mosaic Downs Syndrome [ M.D.S. ] & Personal Growth.
Music: Overcome“ Within Temptation ” Mood: “Content”
After my 6:30pm flight to Dallas Fortworth was cancelled I had to very quickly make a decision to stay at the CVG Airport [which is was what I wanted] and having less stress. This situation gave me another choice and level of stress to also commit energy to realize myself i another Hotel, on a airport Voucher in the Comfort Inn, for a night with every color of brown I believe known to man! In one room. I loved all of what the conference gave me, yet the adventure coming home know one expected! So, I had to push the fact that this was the very first time ever traveling alone, and quickjl;y learnoing the ropes of 4 airport schedules, and provide myself the confidence to wake-up my pride and set a alarm clock which looked acient for 5:00am. After waiting for an hour talking on my cell updating family at home, with 1 single bar left on cell getting my point across even faster! I finally called the hotel myself, and asked what the deal was. to have me a picked up so I could start to plan a very copmplicated morning to also have a 5:30 wake-up call and then to be shuttled back to the CVG Airport at 6:30 so I would be fully covered and on time for my next flight at 8:55am. Mind you I’ve never done anything like this, but now writing this at 7:16am and on time, infront of my gate. I was surprised to know, that I did everything right!
Talking to my Girl-friend, shana, and father last night. Coming back in a hurry, to aid my son who went to the hospitol and now has staples in the back of his head becuase someone was NOT watching him at daycare and fell hard getting a call 15mins after landing in Cininnati I was worried all weekend long! I’m going to be back home before night fall today. I atte me a standard rush,ed dinner that considerted I didn’t have to much to work with in terms on food, and did notr want oto leave my brown rainbowed room. I’m sure they’re nice people and good staff there, yet my knowlegde of a empty beer bottle, and miller genuine draft bottle cap was something I bypassed to simply leave out any or other stress on what I had in my head at that moment! And the need to have a cigarette was a great! In conversation with my girl-friend shana I always included, with my “I love you’s” I always added “I’m on my way back home” I always said this!
So in attempting to come back home, running aganst time, quick decision making, deliberation, and a heart-felt attitude on the engine that died on me to delay me. I’ve also been listening to from a dedication to me “Halo” From Beyonce’ and “mad” from Ne-yo. Everything is perfect and in line from my on-the-go plans. I’m going to Minneapolis, Min to connect to my last flight to Portland, Or PDX Airport. No matter what the situtaion was I always knew that shana was taking care of my son, and his brother to the best of her abilities. Her and I definatley have had our MOMENTS. That is just a given! And I can’t wait to see those 2pair of blue eyes in both my boys, and the dragon green eyes on her face when I’m done being mobile and in my home state. Check Ronins’ head, and see how those staples are doing in the back of his head from falling! I got that knowledge after I got off my plane to the hotel and be the Conference Assistant, and Self Advocate for the IMDSA’s 4th Biennial Research & Awareness Conference, at the Sheriton Hotel, in Cininnati and commit, and dedicate my self willingly, and help with everything “Casey’s my right hand man” a statement made by a good-friend, and co-worker Kristy Colvin The President. with what was going on at home with ronin, and what was pyhiscally infront of me I was not about to dissapoint anyone even in portland several states away! In attempts to keep my head-up, my pride awake, and one foot infront of the other! [my son, brother, and shana will be coming with me next time!] A deliver my abilities in the best way I know how, and I feel I did a great job and being balanced! in an adventure for the representation of why I made my trip to begin with “stand with pride”
This morning I bought me my starbucks Venti white triple shot, with no whip mocha , and McDonalds breakfast burritos. I’m on my way home, after a huge experience in a weekend I’ll emotionally, physically and mentally never forget… and I’d do it all over again, without ronins’ head injury of course!
I remember so many people tell me what I can’t do, and what I shouldn’t do from something that was put on me not by choice but compromising and in trust on what fate gave me… I have Mosaic Downs Syndrome, and I can do more than what people may think, or expect! “watch me” I am home, and safe from airport chaos and feel very accomplished on the entire experience. I was never good in school, and was slightly a troube maker at one point or another. But, I had to get lost physically, emotionally, and mentally to find my way back home on alot of levels, and I feel that was something I did on my own. I’ve learned to take the high road, and balance myself. so, I can better each situation and all around me in the perspective, on something very simple, yet very direct “dont tell me what I can’t do” So, if you’re a parent or family member involved with Down/s, And or Mosaic Down/s we will surpise you… And I recommend the book “America According to Connor Gifford” a presentor, and a friend of mine.
Possibly-related Articles: (auto-generated)
